Walk to End ALS goes virtual in Ontario on June 20 during June ALS Awareness Month
A lot has changed as the world continues to face the uncertainty and challenges of a global pandemic. But one thing remains the same – and that is the ALS community’s desire to put an end to ALS. On Sunday, June 20, the Walk to End ALS is returning to Ontarians as an engaging online event offering connection and community. Participants from across the province will unite as a community to rally virtually in support of every person living with ALS today and to honour loved ones no longer with us.
Today 3,000 Canadians are living with ALS – a terminal disease that progresses with devastating swiftness. Unforgiving and relentless, people living with ALS face progressive paralysis and over time will lose the ability to walk, talk, swallow, eat and eventually breathe. COVID-19 has had a particularly dire impact on people living with ALS. Their day-to-day stressors, including isolation, are on the rise, existing challenges have been amplified and new issues are emerging that are impacting the entire ALS community.
Funds raised through the Walk to End ALS are essential in helping the ALS Society of Canada (ALS Canada) provide community-based support to people and families across Ontario, easing the burden of their ALS journey; and in supporting the ALS Canada Research Program, the only dedicated source of ALS research funding in the country.
“This is the second year ALS Canada is holding the Walk to End ALS virtually, and the way the ALS community has embraced this event in its new format is a testament to their resilience and spirit. No matter how much COVID-19 has changed our daily lives, we know ALS doesn’t stop, and neither will the ALS community as we rally together to support one another and raise much needed funds for research, community-based support and equipment for people, helping to alleviate the burden of this disease.”Natalie Russell, Senior Manager, Fund Development at the ALS Society of Canada.
Walk to End ALS Virtual Event Details:
• 10:00am ET – Virtual start line
• 10:30am ET – Time to “walk” – or whatever activity is meaningful to you!
• Noon ET – Virtual finish line (with live video, entertainment and highlights of the day).
We’ve also invited a few special surprise guests who are excited to celebrate with us!
To learn more about the Walk to End ALS, or to register or donate, visit www.walktoendals.ca/ontario
What is ALS?
ALS, which stands for amyotrophic lateral sclerosis, is a brutal and unforgiving disease with no cure. It gradually paralyzes people because the brain is no longer able to communicate with the muscles of the body that we are typically able to move at will. Over time, as the muscles of the body break down, someone living with ALS will lose the ability to walk, talk, eat, swallow, and eventually breathe. Approximately 1,000 Canadians are diagnosed with ALS each year and 80 per cent of them die within two to five years.
About the ALS Society of Canada
Founded in 1977, the ALS Society of Canada (ALS Canada) works with the ALS community to improve the lives of people affected by ALS through support, advocacy and investment in research for a future without ALS. We are a registered charity that receives no government funding – all of our services and research are funded through the generosity of our donors. Through the ALS Canada Research Program, we fund peer-reviewed research grants, foster collaboration and build capacity within Canada’s ALS research community and participate in new areas of research where we are well-positioned to have an impact. Within Ontario, ALS Canada has a role similar to that of the provincial ALS societies providing services and support to help meet the needs of people living with ALS. Through advocacy federally and provincially within Ontario, ALS Canada gives voice to the collective experience of people living with ALS to help drive program and system changes for the ALS community. www.als.ca